Archive for the 'Uncategorized' Category

RP Tricks of the Trade

A wise man once said “write what you know” and knowing is a perpetual education. I know I’ve learned a lot over the last few years, much of it positive and most of it by trial and error. I’ve assembled an impressive bag of RP tricks that are likely familiar to you all. When I […]

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Patient-Driven Acupuncture Research Database – An Interview with Nadine Streit

Fellow RPer Nadine Streit is in the process of launching a patient-driven RP Acupuncture Database to collect objective, quantifiable results from RP patients about the use of specialized acupuncture to treat RP.  I reached out to her recently to find out more about her, as well as  her goals and plans for this project. Have […]

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Meet Seattle Eye Acupuncturist Lee Huang

I first reached out to Lee Huang nearly a year ago, after an Internet search for “eyesight”, “vision” and “acupuncturist” in the Seattle area pulled up her name. Like my acupuncture experiment partner, Jeanne Aufmuth, I was determined to find someone local who could help me maintain my remaining eyesight. In my case, it was […]

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Changing Course with my Acupuncture Treatment

I had a sobering kick in the pants last week when I underwent a visual field test at an eye doctor’s office and saw on paper what I’ve been sensing for the past month or so: that the little amount of central core vision I have remaining—the small window that enables me to see parts […]

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Tanya’s Eyesight Saving Quest: Guest Post

I have been struggling with RP my entire life. Even when I don’t remember struggling with it, I was. When I was a toddler my mom recalls me holding her hand extra tight when going into dark places. Of course it was easy to write it off as “afraid of the dark” when there was […]

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Maintaining her Eyesight: Ten Years and Counting

Marisa Postlewate may suffer from Usher Syndrome 2A – a degenerative disease that consists of both Retintis Pigmentosa and progressive hearing loss. But most people wouldn’t know it by interacting with her. At almost 61, Marisa has nearly fifteen degrees of clear central vision and hearing that works fine with the help of hearing aids—and […]

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Letting Go of Fear

When I walked out of the latest retinal specialist’s office a little over two years ago, I was consumed with fear. Like retinal specialists before her, my newest retinal specialist told me there was nothing I could do to stop the progression of my RP and save my eyesight. And when I pressed her for […]

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An Interview with Eye Acupuncturist Lizbeth Ryan

I’ve been hearing about Lizbeth Ryan, an eye acupuncturist in Bentonville, Arkansas, for a few months now. Several of her patients have contacted me to tell me about her; and speak highly of her comprehensive treatment and her affordable treatment prices. A couple have also shared with me eye image scans from their visual field […]

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Acupuncture Treatment Round 4

I just wrapped up a week of treatment with Dr. Andy Rosenfarb, my fourth round since I started his acupuncture treatment a year ago. What was most remarkable about this week is how it started. In the past, I’ve come every three- to three-and-a-half months and have always experienced a slide in my vision between […]

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Acupressure and Eye Exercises

I had the opportunity to share my eye health journey with a group of senior citizens at a local senior center this week and it reminded me just how much we can personally do to maintain our eyesight. I know I’ve said it lots of times on this blog — but it really does come […]

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