Archive for the 'Uncategorized' Category

RP-Free Moments from All of You

I’ve loved reading these ENJOYING LIFE posts from all of you. It’s inspiring and such a reminder to embrace the moment and Live Life.  If any of you are looking for some great ideas for bringing joy to your weekend, read the lists and posts below. Erin from Texas: Playing outside in the water with […]

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My RP-Free Week & Aha Moments

I spent last week focusing on my daily life and all the things I can do and enjoy. And it turns out that it’s almost everything I could do when I had “normal eyesight.”  It made me realize something powerful: that despite my low vision and the occasional challenges it poses, it doesn’t keep me […]

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Taking a Break from RP

I love hiking and nature. So for Mother’s Day, I told my husband and two daughters that I wanted to head to Discovery Park—a huge wildlife park in Seattle that features a variety of hiking trails, including one that takes hikers down to the beach and to a very cool, old lighthouse. My daughters ran […]

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Pulling Together to Beat Retinitis Pigmentosa

  For the first six years after my diagnosis, I hid my disease. I didn’t want anyone to pity me or think less of me, and I didn’t want Retinitis Pigmentosa to define who I was. Even after I started writing about my experiences with the disease in essays and a memoir, I steered clear […]

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Saying NO to Cyber Bullies and Attacks

I hate conflict—and hate putting any negative energy into the Universe. So I usually just ignore it when people send ugly emails or comments. But recently I’ve had two people—one an acupuncturist, the other hiding behind a gmail address—leave attacking notes re: Dr. Andy Rosenfarb. Here’s what I want to say LOUD and CLEAR: This […]

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The Battle Against Inflammation

My new friend, Joseph, turned me on to this website. It’s called Deflame, and it’s packed with great information about the dangers of inflammation and ways to reduce inflammation in your body. I know it’s hard to break eating habits and revamp diets. Believe me, I know. But there is so much research now about […]

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Acupuncture RP Treatment Round 2 – TEST RESULTS

I just wrapped up my weeklong treatment with Dr. Rosenfarb and have experienced more improvements, particularly in my mid-to-far horizontal and bottom periphery (I still have very little top peripheral vision). I still have a donut of complete blindness around my central core– but it’s shrinking from the outside in. The goal that Dr. Rosenfarb […]

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Going it Together

The coolest, most unexpected part of my eyesight healing quest has been connecting with other people struggling with Retinitis Pigmentosa who — like me — refuse to take “no hope” for an answer.  And they all come with incredible family members who are equally determined to ensure that their loved ones  continue to SEE the […]

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Acupuncture Treatment Round 2 – Baseline Test Results

I’m back in Westfield, New Jersey, for my second treatment session with Dr. Rosensfarb.  In the three months since my first treatment visit,  I don’t feel like I’ve had much of a chance to breathe. My schedule has been crazy because of  the nationwide launch of my memoir, Hippie Boy, which in turn has led to […]

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Learning to See WHAT COUNTS

Going blind sucks. So does walking into an eye doctor’s office for the first time in your life with trendy red cat-eye frames already picked out, only to be told that you’ve got a serious problem that no glasses — regardless of how good they look on you — are going to fix. I was […]

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