Determined to See

Throwing Cancer into the RP Mix

With all the green juicing I’ve been doing, breast cancer was the last thing I saw coming. But I guess that’s the thing about life: It throws things at you whether you see them coming or not – and it’s a reminder that as hard as RP can get, there’s lots of hard core health […]

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Thankful for Our Partners

Jeanne’s Take: Ingrid Ricks is my RP partner in crime and the person who has made this journey not only tolerable but gratifying. We all need someone who understands the struggles firsthand and who opens up their ears and their hearts when you need it most. Of course there’s more to life than RP; a […]

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End of Trial – New Beginning

Jeanne’s Take Where to start? At the beginning of course. I met Ingrid at a low point in my RP journey and it’s safe to say that what I read in her blog changed my life. While researching the ever-elusive “cure” for RP, I stumbled on Ingrid’s adventures with acupuncture and knew I had nothing […]

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My RP Strategy? Get Healthy

I’ve spent the past two years searching for answers to save my eyesight. And from everything I’ve learned, it comes down to one key concept: whole-body health. It’s not just adding a new vitamin or mineral supplement or changing up diet. It’s not just incorporating cardio exercise, reducing stress or adopting a positive outlook on […]

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Take Our Retinitis Pigmentosa Eye Health Challenge

Having regained some eyesight over the past two years, I’m convinced that we have the power to save and improve our vision. The question is, what we are willing to do to save it? For me, the answer has and continues to be a complete shift in lifestyle and mindset. I get messages every week […]

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My Holiday RP Strategy

Home I’ve been trying to find the energy to post about micro-current stimulation and fulvic acid for the past few days. But between Christmas tree hunting, holiday shopping, having fun with my family and …well…parties, it’s been pushed to the back of my mind. What I know for sure at this point is that there […]

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Acupressure and Eye Exercises

I had the opportunity to share my eye health journey with a group of senior citizens at a local senior center this week and it reminded me just how much we can personally do to maintain our eyesight. I know I’ve said it lots of times on this blog — but it really does come […]

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Ask the Expert – Acupuncture & Retinitis Pigmentosa

I’m starting a new Ask the Expert feature on this blog where practitioners who use naturopathy, acupuncture and other integrated health therapies to treat RP will answer your questions. My first Guest Expert is Dr. Andy Rosenfarb, who specializes in treating RP and other degenerative eye conditions with acupuncture and naturopathy. Question: If people suffering from RP start acupuncture […]

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FFB Spokesperson Shares Thoughts/Experience with Acupuncture

I was immediately fascinated when I heard April Lufriu’s story because of her role as a national spokesperson for the Foundation Fighting Blindness (FFB). April’s involvement with FFB goes back to 2007, when she started doing vision walks to raise money and awareness that she hoped would help find a cure for her sister’s RP. […]

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Taking Charge of Our Eye Health

When I first started on this eyesight healing quest in early February 2013, I was at the lowest point in my life. After waiting for six months to see a retinal specialist because I’d heard she was starting stem cell clinical trials, I was told that RP was an orphan disease and was too low […]

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