For those of you who missed this story, Steve Fialkoff, a 68-year-old New Yorker with the Usher 2A RP mutation, stumbled on a combo of curcumin, black pepper and ginger last February that started giving him back bits of eyesight. Determined to spread the word about his discovery, the video-editor-turned-playwright who should also consider a […]

It hit me last night that I’ve done a really lousy job of this. I’ve been so focused on putting on a cheery face and a positive all-is-great attitude so that the Universe will deem me worthy of getting back my eyesight that I punish myself every time I make a misstep. If I feel […]

My memoir about my early journey with RP is finally available as an audiobook and I was given 25 free promo codes for anyone who is interested. I wanted to share it here because I know my journey will resonate with a lot of you. My next book is going to end with me getting […]

Steve Fialkoff was only trying to boost his immune system when he started ingesting 250 milligrams of curcumin daily last December. The sixty-eight-year-old New Yorker had contracted Covid-19 and hoped the plant-based supplement — which is known for it’s anti-inflammatory and antioxidant properties — would help combat the virus.  He didn’t give it much thought […]

Nanoscope Therapeutics was recently singled out for its ground-breaking optogenetics drug at the OIS Retina Innovation Summit in New York, the latest achievement in the company’s quest to restore meaningful vision to the millions of us suffering from debilitating retinal diseases. Since announcing the remarkable results of its Phase 1/2a clinical trial for Retinitis Pigmentosa […]

Researchers at University of California, Berkeley and UC Santa Barbara have discovered that disulfiram, a drug that combats alcoholism, may also be the key to restoring vision in people with advanced RP and age-related macular degeneration. The key is that disulfiram, which inhibits enzymes involved in the body’s ability to degrade alcohol, also impedes the […]

I didn’t think doctors or researchers would ever crack the code to my RP-suspected vision loss. I don’t have any family history and the two genetic tests I underwent in 2018 came up empty. But with all the breakthrough medical advancements now being made on the RP front, that might as well have been light […]

On the surface, Nanoscope’s June 3rd news release announcing the remarkable vision-restoring results of its phase 1/2a clinical trial in India might sound like an out-of-nowhere miracle. But in reality, their breakthrough optogenetics drug that restored meaningful vision in 11 previously blind RP patients has been decades in the making. Without ongoing biomedical advancements combined […]

I’ve been trying to find the words to describe the flood of emotions that have been swirling inside of me since talking with the team at Nanoscope Therapeutics about their recently announced vision restoring optogenetics therapy for late stage RP. I’ve alternated between crying, doing a happy dance, and shouting out thank you prayers to […]