I just wrapped up a week of treatment with Dr. Andy Rosenfarb, my fourth round since I started his acupuncture treatment a year ago. What was most remarkable about this week is how it started. In the past, I’ve come every three- to three-and-a-half months and have always experienced a slide in my vision between […]
Read the rest of this entry »Archive for the 'Uncategorized' Category
Acupressure and Eye Exercises
I had the opportunity to share my eye health journey with a group of senior citizens at a local senior center this week and it reminded me just how much we can personally do to maintain our eyesight. I know I’ve said it lots of times on this blog — but it really does come […]
Read the rest of this entry »Doubling Down on an Anti-Inflammatory Diet
I’ve got to admit, this whole diet shift is a hard one for me. I love all the foods I’m supposed to avoid – with cheese topping the list. But I’ve learned way too much about the role inflammation plays in degenerative disease to keep dabbling on the sidelines. So, starting Now, I’m taking the […]
Read the rest of this entry »Dr. Rosenfarb Acupuncture Treatment Round 3 Results
I just wrapped up my third treatment session with Dr. Andy Rosenfarb and am holding strong in terms of the bench line gains I made after my first treatment in December. I always slide a little between treatments, but rebound after my five-day stint. This time, though, there were two interesting developments: My right side central […]
Read the rest of this entry »An Interview with RP Advocate Sandro Pretolani
Of all the people I’ve met in my search for an answer to Retinitis Pigmentosa, only a handful come close to the amount of time and energy devoted by Sandro Pretolani. He tirelessly combs the internet for anything that might hold promise for RP patients — especially as it relates to advancements in western medicine, science and […]
Read the rest of this entry »My RP-Free Week & Aha Moments
I spent last week focusing on my daily life and all the things I can do and enjoy. And it turns out that it’s almost everything I could do when I had “normal eyesight.” It made me realize something powerful: that despite my low vision and the occasional challenges it poses, it doesn’t keep me […]
Read the rest of this entry »Taking a Break from RP
I love hiking and nature. So for Mother’s Day, I told my husband and two daughters that I wanted to head to Discovery Park—a huge wildlife park in Seattle that features a variety of hiking trails, including one that takes hikers down to the beach and to a very cool, old lighthouse. My daughters ran […]
Read the rest of this entry »Pulling Together to Beat Retinitis Pigmentosa
For the first six years after my diagnosis, I hid my disease. I didn’t want anyone to pity me or think less of me, and I didn’t want Retinitis Pigmentosa to define who I was. Even after I started writing about my experiences with the disease in essays and a memoir, I steered clear […]
Read the rest of this entry »Saying NO to Cyber Bullies and Attacks
I hate conflict—and hate putting any negative energy into the Universe. So I usually just ignore it when people send ugly emails or comments. But recently I’ve had two people—one an acupuncturist, the other hiding behind a gmail address—leave attacking notes re: Dr. Andy Rosenfarb. Here’s what I want to say LOUD and CLEAR: This […]
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