I hate conflict—and hate putting any negative energy into the Universe. So I usually just ignore it when people send ugly emails or comments. But recently I’ve had two people—one an acupuncturist, the other hiding behind a gmail address—leave attacking notes re: Dr. Andy Rosenfarb.
Here’s what I want to say LOUD and CLEAR: This blog is about my personal journey with my eyesight—and all the steps I’ve taken to save it after being told repeatedly by retinal specialists that there is no hope for me. That I should just accept that very soon I won’t have eyesight, won’t be able to see my daughters grow up, won’t be able to see my husband or my own reflection in the mirror.
Now, more than a year after I started this quest, my eyesight (while still a long way from great) has improved significantly—something I’ve been told is impossible. And I chalk this up to two things: a drastic change to my diet and the acupuncture/light therapy treatment provided by Dr. Rosenfarb.
While there is a lot of research and work to be done, I applaud everything Dr. Rosenfarb is doing to get his RP treatment protocol measured by Western medical standards—first through a small pilot study done in conjunction with Johns Hopkins University, now a larger study being funded by the NIH.
I’m not writing this blog as a journalist. I’m writing it as a patient on my own eyesight-healing quest. I know there are other acupuncturists who are working to treat eye diseases. I think that’s wonderful because, done right, I believe this is a valuable treatment option for many people struggling with RP. Rather than trying to tear down people like Dr. Rosenfarb who are doing everything in their power to share information and develop standard treatment protocols, I challenge everyone to join Dr. Rosenfarb in his efforts to get this treatment measured by Western medical standards so that insurance will begin covering this treatment for those of us who want to access it and are struggling to do so financially. I challenge everyone to work together to provide a broad network of acupuncturists committed to providing a standardized, measurable, affordable treatment that can be accessed by RP patents around the globe.
Please let’s all work together to share information and help the hundreds of thousands of people around the globe (me included) who are struggling with this devastating disease to save our eyesight.
I absolutely agree with you,Ingrid – I really appreciate your courage – go on so,my friend! Don’t let them put you down!
Thank you, Sandro. And thank you for all you do to share information and help people with RP. Together – We ARE going to beat this. Best, Ingrid
Dear Ingrid,
I am an acupuncturist and have been treating RP since 1987.
I think you via your blog do a wonderful job of giving people hope that something can be done about their situation.
I know Andy Rosenfarb very well – he was even in my clinic in Denmark to learn our way of treating RP.
Keep writing and encouraging.
John – thank you so much for your note. Andy Rosenfarb has mentioned your work – and I’ve heard about you from others as well. If you send all your clinic info, I’ll add you to the resource guide I’m starting to develop. Would also love to do a Q & A with you.
Thank you for all your are doing to help patients with RP. Best – Ingrid
You just mail me any questions you have and I will be happy to answer you.
Fantastic. Will send some questions later today. Hope my email got through to you yesterday.
Best,
Ingrid
I just emailed some questions over. If you don’t receive, please let me know. Thanks!
Hi Ingrid, I can understand your concern my son has been dealing with bullying in school. Thanks you for your encouragement.
Inspired Fan
yeah…bullying in ANY form is just wrong. Hope you are able to stop it for your son. xo
Go for it Ingrid! We all have our journey through this. I have yet to explore acupuncture in regards to this affliction. But I do know diet has helped me. It may be incremental. It may possibly be a means 2 halt. But I do believe in the two years I’ve explored A new diet… It’s kept me stable and possibly improved my situation. Your blog is a wonderful forum for sharing.
Tania – I agree. Diet is KEY. I’m so glad it’s helping you as well. I think it’s one of the most important things we can do to save our eyesight. Let’s just keep GOING.
Thank you for your continued efforts to bring awareness to this debilitating condition that afflicts so many people like you and my brother Joe. Dr Rosenfarb’s genuine compassion for his patients along with his steadfast research to find a cure brings renewed hope to patients who had none. God bless you Ingrid.
Thanks for your note, Karen. I’m with you – Dr. Rosenfarb has been such a gift to so many of us and the world needs to know that. Hope to see you end of June with Joe. xo – Ingrid
Oh my gosh, I cannot believe that there has been any negativity on your blog! You are such a positive person and I feel like what you’ve been doing has been not only helpful and inspiring, but also very honest. It’s clear that this is about your journey and what you’ve discovered. But I guess bullies and trolls can show up anywhere – truly anywhere. I’m disgusted. It’s great to see such positivity and encouragement in the comments on this post, though. You keep doing you, and don’t worry about those who just don’t get it and try to cover everything with a dark cloud.