I’m only a week into my new treatment protocol that incorporates Seattle-based acupuncturist Dr. Xin-dong (Rosey) Ma, and I finally feel like I’m on the right track. I’d seen Rosey a few times a couple of years ago but language barriers kept me from fully explaining my eye disease to her and, at the time, […]
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Carving My Own RP Treatment Path
I admit it. I am not a passive “just follow, don’t ask” kind of person. I like to be in charge of my own destiny and even when a treatment may be benefitting me, it’s my nature to ask lots of questions and keep searching for answers to heal my eyesight and ensure that my […]
Read the rest of this entry »Diet and RP: A Q & A with Dr. Damon MIller
I first met Dr. Damon Miller five years go when I decided to search for an alternative treatment for my Retinitis Pigmentosa. Dr. Miler, who is a board-certified MD, naturopath and acupuncturist, offers a comprehensive RP treatment program that was developed by Grace Halloran, a pioneer in holistic healing for eyes and the author of […]
Read the rest of this entry »Getting Through The Hard Days
Sometimes this quest to heal my eyesight feels really hard. There are days that I don’t want to have to spend forty-five minutes doing acupressure and eye exercises and juicing. And some mornings, a pile of greasy bacon washed down with a pot of coffee sounds really really GOOD. Last week was a relapse week. […]
Read the rest of this entry »Orange Algae, TUDCA & Food Allergy Testing Update
After an amazing two and a half weeks in Italy, France and Switzerland, I’m back in Seattle and have resumed my RP healing program full force. I kicked it off by firing up my juicer and getting back into my morning routine that starts with a large glass of distilled water, followed by an equally […]
Read the rest of this entry »It’s All About the DIET
While my daughters did some rock jumping into the Mediterranean and my husband slept in the sun yesterday, I immersed myself in Kris Carr’s Crazy Sexy Diet, a must-read for anyone dealing with RP or any other serious health issue. Kris Carr is a cancer survivor and self-named Wellness Warrior who turned to a vegan, […]
Read the rest of this entry »I Want My Eyesight
I’ve been in Italy for the past week—part of a dream vacation my husband and I have been planning with our two daughters for years. And in case I needed a reminder of just how critical eyesight is, this trip has been it. Whether it’s navigating crowds, catching trains, climbing stairs or playing cards with […]
Read the rest of this entry »Healing my Eyesight from RP: My Journey to Date
It’s been five months since I first started out on my eyesight-healing quest and a lot has changed in terms of my healing strategy. In the beginning, I thought it would revolve entirely around acupuncture and Chinese herbs. I’m a big believer in Traditional Chinese Medicine. The benefits of acupuncture for the treatment of RP […]
Read the rest of this entry »Retinitis Pigmentosa Resource Guide
Since starting my eyesight-healing quest four months ago, I’ve discovered numerous resources and alternative treatment options for people determined to conquer Retinitis Pigmentosa.. Below, in no particular order, is a list of the resources that have empowered me and are helping me in this journey. (I’ll continue to add to this guide over the course […]
Read the rest of this entry »Algae to Treat RP on Way from Israel
This healing eyesight quest is getting expensive—though I’m determined to try every avenue possible this year and then figure out the most affordable route for my ongoing treatment. Last week, I racked up nearly $2,000 on my American Express. I think I spent a total of $675 for the comprehensive food and other allergy testing […]
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