The coolest, most unexpected part of my eyesight healing quest has been connecting with other people struggling with Retinitis Pigmentosa who — like me — refuse to take “no hope” for an answer. And they all come with incredible family members who are equally determined to ensure that their loved ones continue to SEE the world.
Last night, a group of us all headed to dinner. There was no stress about not being able to find the table or see the menu — because at least half of us were in the same boat, and the others stepped in to help, Several of us have been to Dr. Rosenfarb’s clinic for treatment before and it’s empowering to hear how the treatment has been benefitting them. Joe, who is in town for his second treatment session, even discussed how we might secure permanent housing here that would help offset lodging costs for patients traveling to New Jersey for treatment.
It’s a reminder of the exponential power of community. The only bummer part of this picture is that it’s missing Karen (Joe’s sister), who volunteered to take the picture.
Wish I could be there!! Being a South African makes it difficult cost wise to get to Dr Rosnefarb’s clinic but I remain hopeful that he will reach out to acupuncturists here in SA and make it possible for similar treatments to take place in our country. In the meantime, I remain inspired by your feedbacks. Thank you alway for sharing Ingrid!
Jana x
How absolutely wonderful! It really must be fantastic to be with people who can personally relate to what you’re going through. Everyone in the picture looks happy to be there. And I think Joe’s idea about a permanent place that could house patients is a really excellent one. I hope you’ll keep us updated about any developments there, including fundraising opportunities, if necessary. All the best to all of you guys!
Thanks, Alysa. Thinking I need to hear an update soon from you xo
That is so great to see Ingrid! I have not found such a community in Vancouver yet but I will keep looking 🙂 All the best!
It’s so helpful. Good luck1