Archive for the 'Diet' Category

Doubling Down on My Health

If I needed another push to get my whole body health in order, this bout with breast cancer has done the trick. And at this point, I’m determined to get to the root of my health issues—cancer and RP alike. The person I’m tapping for help is Dr. Damon Miller, who immediately reached out to […]

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Tanya’s Eyesight Saving Quest: Guest Post

I have been struggling with RP my entire life. Even when I don’t remember struggling with it, I was. When I was a toddler my mom recalls me holding her hand extra tight when going into dark places. Of course it was easy to write it off as “afraid of the dark” when there was […]

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End of Trial – New Beginning

Jeanne’s Take Where to start? At the beginning of course. I met Ingrid at a low point in my RP journey and it’s safe to say that what I read in her blog changed my life. While researching the ever-elusive “cure” for RP, I stumbled on Ingrid’s adventures with acupuncture and knew I had nothing […]

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Maintaining her Eyesight: Ten Years and Counting

Marisa Postlewate may suffer from Usher Syndrome 2A – a degenerative disease that consists of both Retintis Pigmentosa and progressive hearing loss. But most people wouldn’t know it by interacting with her. At almost 61, Marisa has nearly fifteen degrees of clear central vision and hearing that works fine with the help of hearing aids—and […]

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RP – The Brighter Side

We’re all familiar with the downsides of our disease – not only are we forced to regularly rehash it but we live it day in and day out. It’s challenging at best and downright depressing at it’s worst. As Ingrid and I move through our journey towards healthier sight we have discovered much about the […]

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Breaking the Addiction to Food

I’m twenty-one days into a month-long elimination diet that forbids added sugar, grains, legumes, potatoes, alcohol, dairy or even goat or sheep milk/cheese. And it’s  the hardest challenge I’ve undertaken to date in my ongoing eyesight-healing quest. I knew I was addicted to food. Cheese-covered tater tots and pizza washed down by double IPAs had […]

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Letting Go of Fear

When I walked out of the latest retinal specialist’s office a little over two years ago, I was consumed with fear. Like retinal specialists before her, my newest retinal specialist told me there was nothing I could do to stop the progression of my RP and save my eyesight. And when I pressed her for […]

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My RP Strategy? Get Healthy

I’ve spent the past two years searching for answers to save my eyesight. And from everything I’ve learned, it comes down to one key concept: whole-body health. It’s not just adding a new vitamin or mineral supplement or changing up diet. It’s not just incorporating cardio exercise, reducing stress or adopting a positive outlook on […]

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Focus

Focus. The word is so pregnant with meaning when you live with RP. Not your garden variety focus on daily tasks and minutiae but the struggle of focusing on objects, the snags of focusing conflicted feelings and the very real fear of focusing on a future without sight. I’ve been giving this thought since taking […]

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Take Our Retinitis Pigmentosa Eye Health Challenge

Having regained some eyesight over the past two years, I’m convinced that we have the power to save and improve our vision. The question is, what we are willing to do to save it? For me, the answer has and continues to be a complete shift in lifestyle and mindset. I get messages every week […]

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