A New Year is upon us with maximum potential for joy and expectation. For as long as I can recall I’ve carved out time on December 31 to cobble together a list of positive memories from the previous three hundred and sixty four days. Not only does it help me move on but I’m perpetually […]
Read the rest of this entry »Archive for the 'Lifestyle and Acupuncture' Category
Acupuncturists Who Treat RP
So many of you have been asking for this that I’m re-posting what I have. Hopefully we can grow this list in a huge way over the next year — with a focus on affordable, ethical, skilled practitioners who are committed to treating Retinitis Pigmentosa and other degenerative eye diseases. If anyone has positive experiences […]
Read the rest of this entry »Tanya’s Eyesight Saving Quest: Guest Post
I have been struggling with RP my entire life. Even when I don’t remember struggling with it, I was. When I was a toddler my mom recalls me holding her hand extra tight when going into dark places. Of course it was easy to write it off as “afraid of the dark” when there was […]
Read the rest of this entry »Staying the Course
I saw Patrick Kennedy on 60 Minutes Sunday night and listened to him talk about his ongoing battle with alcoholism and mental illness. He pointed out that while he has been sober for five years, he realizes that this is a battle he’ll have to fight every day for the rest of his life—that when […]
Read the rest of this entry »End of Trial – New Beginning
Jeanne’s Take Where to start? At the beginning of course. I met Ingrid at a low point in my RP journey and it’s safe to say that what I read in her blog changed my life. While researching the ever-elusive “cure” for RP, I stumbled on Ingrid’s adventures with acupuncture and knew I had nothing […]
Read the rest of this entry »RP – The Brighter Side
We’re all familiar with the downsides of our disease – not only are we forced to regularly rehash it but we live it day in and day out. It’s challenging at best and downright depressing at it’s worst. As Ingrid and I move through our journey towards healthier sight we have discovered much about the […]
Read the rest of this entry »Our Acupuncture Study Update – Part Two
Ingrid and I are of like mind when it comes to our goals for our eyes. Above all we know that good health and attitude play important roles in the long-term care of our sight. Our paths began much the same way—with a trek to the east coast for a lengthy acupuncture eye treatment. Ingrid’s […]
Read the rest of this entry »Our Acupuncture Experiment: Half Way Point
It’s been nearly three months since Jeanne Aufmuth and I kicked off our informal acupuncture study to test whether weekly treatments with a local acupuncturist who had no special eye training or previous experience treating patients with Retinitis Pigmentosa could help our eyesight. Here’s my experience to date – Jeanne will share hers tomorrow. NOTE: […]
Read the rest of this entry »Letting Go of Fear
When I walked out of the latest retinal specialist’s office a little over two years ago, I was consumed with fear. Like retinal specialists before her, my newest retinal specialist told me there was nothing I could do to stop the progression of my RP and save my eyesight. And when I pressed her for […]
Read the rest of this entry »Focus
Focus. The word is so pregnant with meaning when you live with RP. Not your garden variety focus on daily tasks and minutiae but the struggle of focusing on objects, the snags of focusing conflicted feelings and the very real fear of focusing on a future without sight. I’ve been giving this thought since taking […]
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