I have been struggling with RP my entire life. Even when I don’t remember struggling with it, I was. When I was a toddler my mom recalls me holding her hand extra tight when going into dark places. Of course it was easy to write it off as “afraid of the dark” when there was […]
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Letting Go of Fear
When I walked out of the latest retinal specialist’s office a little over two years ago, I was consumed with fear. Like retinal specialists before her, my newest retinal specialist told me there was nothing I could do to stop the progression of my RP and save my eyesight. And when I pressed her for […]
Read the rest of this entry »Eye WILL Continue to See
I received this early Christmas gift from my new friend Jeanne Aufmuth, a San Francisco film critic who also happens to be stuck with RP. It’s already become one of my favorite possessions because every time I look at it, I’m reminded of my determination to see. My pillow—called Snake Eye–is one of a series […]
Read the rest of this entry »Acupuncture Treatment Round 4
I just wrapped up a week of treatment with Dr. Andy Rosenfarb, my fourth round since I started his acupuncture treatment a year ago. What was most remarkable about this week is how it started. In the past, I’ve come every three- to three-and-a-half months and have always experienced a slide in my vision between […]
Read the rest of this entry »Taking Charge of Our Eye Health
When I first started on this eyesight healing quest in early February 2013, I was at the lowest point in my life. After waiting for six months to see a retinal specialist because I’d heard she was starting stem cell clinical trials, I was told that RP was an orphan disease and was too low […]
Read the rest of this entry »Treating RP: Think of It Like a Jigsaw Puzzle
Every week I receive three or four emails from people who are suffering from RP and want to know exactly how much my eyesight has benefitted from the acupuncture treatment I receive and the overall diet and lifestyles changes I’ve made. “Do you really see improvements,” people will ask. “Exactly how much has your vision […]
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