Ingrid and I are of like mind when it comes to our goals for our eyes. Above all we know that good health and attitude play important roles in the long-term care of our sight. Our paths began much the same way—with a trek to the east coast for a lengthy acupuncture eye treatment. Ingrid’s […]
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Our Acupuncture Experiment: Half Way Point
It’s been nearly three months since Jeanne Aufmuth and I kicked off our informal acupuncture study to test whether weekly treatments with a local acupuncturist who had no special eye training or previous experience treating patients with Retinitis Pigmentosa could help our eyesight. Here’s my experience to date – Jeanne will share hers tomorrow. NOTE: […]
Read the rest of this entry »Letting Go of Fear
When I walked out of the latest retinal specialist’s office a little over two years ago, I was consumed with fear. Like retinal specialists before her, my newest retinal specialist told me there was nothing I could do to stop the progression of my RP and save my eyesight. And when I pressed her for […]
Read the rest of this entry »Focus
Focus. The word is so pregnant with meaning when you live with RP. Not your garden variety focus on daily tasks and minutiae but the struggle of focusing on objects, the snags of focusing conflicted feelings and the very real fear of focusing on a future without sight. I’ve been giving this thought since taking […]
Read the rest of this entry »Take Our Retinitis Pigmentosa Eye Health Challenge
Having regained some eyesight over the past two years, I’m convinced that we have the power to save and improve our vision. The question is, what we are willing to do to save it? For me, the answer has and continues to be a complete shift in lifestyle and mindset. I get messages every week […]
Read the rest of this entry » A Fresh Approach to Eyesight Preservation
Living with RP is a journey—a fact that is hammered home countless times a day and over the course of time. The obstacles are familiar and legion – from a small barking of shins on an open dishwasher door to the larger more difficult loss of independence and a driver’s license. Like all journeys, this […]
Read the rest of this entry »Two Years Into My Eyesight Saving Quest: What I’ve Learned
I’m writing this from a ski resort in Northern Idaho—the same ski resort where I hit rock bottom two years ago and decided to do everything in my power to save my eyesight. I started this quest hoping that if I fought hard enough, I could regain my eyesight and get back to a normal-sighted […]
Read the rest of this entry »An Interview with Eye Acupuncturist Lizbeth Ryan
I’ve been hearing about Lizbeth Ryan, an eye acupuncturist in Bentonville, Arkansas, for a few months now. Several of her patients have contacted me to tell me about her; and speak highly of her comprehensive treatment and her affordable treatment prices. A couple have also shared with me eye image scans from their visual field […]
Read the rest of this entry »Calling All Eye Acupuncturists
It’s my birthday. And of all the birthday wishes and gifts I’ve received, the best is that I have my health and that I can still see my daughters and my husband, and every other beautiful thing this world has to offer. I rarely allow myself to think about the challenges associated with a sight-stealing […]
Read the rest of this entry »Acupuncture Treatment Round 4
I just wrapped up a week of treatment with Dr. Andy Rosenfarb, my fourth round since I started his acupuncture treatment a year ago. What was most remarkable about this week is how it started. In the past, I’ve come every three- to three-and-a-half months and have always experienced a slide in my vision between […]
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